ERNcare4Ua: new platform to help rare disease patients and their families fleeing from Ukraine
April 14, 2022

ERNcare4Ua: new platform to help rare disease patients and their families fleeing from Ukraine


The European Reference Networks (ERNs) have set up a support platform –  ERNcare4Ua – to help rare disease patients and their families caught up by the ongoing Russian war against Ukraine. 

The platform provides information on the 24 networks dedicated to rare and low prevalence diseases funded by the European Commission. 

ERNs are specialised in the diagnosis and treatment of rare/ very rare illnesses in almost all fields of medecine, including rare cancer.

The ERN’s 1,600 expert centres are embedded in more than 300 EU hospitals, generally distributed in most or all EU countries (including neighbouring Ukraine) and Norway.

The platform says the networks are committed to provide a hub for rare diseases patients inside or outside Ukraine.

Find out more

Press release



Interested in the latest news and opportunities?

This website is managed by the EU-funded Regional Communication Programme for the Eastern Neighbourhood ('EU NEIGHBOURS east’), which complements and supports the communication of the Delegations of the European Union in the Eastern partner countries, and works under the guidance of the European Commission’s Directorate-General for Neighbourhood Policy and Enlargement Negotiations, and the European External Action Service. EU NEIGHBOURS east is implemented by a B&S Europe-led consortium. It is part of the larger Neighbourhood Communication Programme (2020-2024) for the EU's Eastern and Southern Neighbourhood, which also includes 'EU NEIGHBOURS south’ project that runs the EU Neighbours portal.


The information on this site is subject to a Disclaimer and Protection of personal data. © European Union,